SHOCKING: A DWP-backed ‘medical scandal’ could be blown wide open – 12 May 2019 + archive

A DWP-backed ‘medical scandal’ could be blown wide open

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A contentious Department for Work and Pensions (DWP) funded medical research project – described by an MP as possibly “one of the biggest medical scandals of the 21st century” –  is close to being blown wide open. Because a call for a public inquiry into it is now getting the support of numerous MPs.

The DWP and the PACE trial

The PACE trial was a controversial research project. It looked into treatment for people living with myalgic encephalomyelitis (ME). You can read Canary articles on the disease here. The PACE trial claimed that patients could improve their illnesses, and sometimes recover, by having cognitive behavioural therapy (CBT) and by using graded exercise therapy (GET).

The results of the £5m trial, part-funded by the DWP, was originally published in the Lancet in 2011. But it was dismissed by many medical professionals and disabled people alike as damaging and ineffective. US government agencies have either downgraded the reliability of CBT and GET or removed them as recommended treatments altogether.

In the UK, CBT and GET are still the NHS’s approved treatment under guidelines from the National Institute for Health and Care Excellence (NICE). But NICE is undertaking a review of this. Recently, more and more academics, medical professionals, and people living with ME have been actively campaigning against the PACE trial and its results. But this has now stepped up a gear with the involvement of a doctor.

A doctor in the house

Dr Sarah Myhill is a practising doctor, author, and campaigner. She has been a consistent advocate for people living with ME. Myhill has written several books and is a seasoned speaker on the disease. She has also been forthright in her views on the PACE trial. And now, she has taken this to the next level.

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Myhill is running a campaign calling for a public inquiry into the PACE trial and what she describes as the “abuse” of ME patients due to its results. It’s called Medical Abuse In ME Sufferers, or #MAIMES.

As she told The Canary, she believes the PACE trial has resulted in the abuse of people living with ME because:

People who are powerless, because they haven’t got the energy to fight, are told by doctors who should know better about treatment that actually makes them worse. This is medical abuse. That’s why I’ve called it MAIMES.

The notion of the PACE trial resulting in the abuse of people living with ME seems a valid one when you look at people’s experiences.

Medical abuse?

Jessica Taylor-Bearman is one such example. She wrote a book called A Girl Behind Dark Glasses about her experience of severe ME and how the medical profession dealt with her and the disease. In the book, Taylor-Bearman describes how she spent a period of time virtually paralysed in hospital. During this period her experiences included;

  • Doctors effectively leaving her to vegetate.
  • Sexual assault by a carer.
  • Doctors giving her energy drinks as a form of treatment.

One consultant told her:

I want to see a big improvement in you, otherwise I will be sending you back to where you came from and you will never get better. You wouldn’t want that, would you?

But moreover, Taylor-Bearman’s experience of medical professional’s approach to ME is symptomatic of countless other people’s. So many have been disbelievedstigmatised, given incorrect treatment or ultimately told it’s ‘all in their heads’. Children with ME have also been negatively affected. Myhill and others believe much of this stems from the PACE trial. So, MAIMES aims to do something about this.

A public inquiry

Myhill is calling on people to contact their MPs to get them to officially sign up to support the call for a public inquiry. It needs the support of at least 50 MPs. Currently, it has 38. Then Myhill and the campaign organisers will officially approach the health secretary Matt Hancock. They’ll call on him to launch a public inquiry. You can read full details of MAIMES goals and approach below:

So, this is where the public come in. The MAIMES campaign needs people to contact their MPs. They need to explain about the PACE trial and the campaign. Then they need to ask MPs to officially support it. Myhill and her co-campaigners Craig Robinson and Kathryn Twinn have produced all the resources people need to do this. Contact forms, detailed information, and more are all available here.

As Myhill told The Canary:

This has got to be a patient-driven revolution. We need to start that with a proper public inquiry. And to get that public inquiry we need enough MPs to demand that… When we get enough MPs… then we will have our day. It could change the whole management of ME in this country.

Enough is enough

It’s a bold vision but one that’s needed. Because the PACE trial’s implications have been far-reaching. As Dr Keith Geraghty described in a recent review of the trial, CBT for ME patients is:

an idealised narrative model. It exists as a dogmatic model favoured by model promoters. Our review exposes stark weaknesses, inconsistencies and contradictions, both in its theoretical underpinnings and the research said to prove model validity. Our findings suggest the CBM [cognitive behavioural model] is not fit for purpose, as it poorly reflects the accounts given by patients and it ignores the wealth of evidence showing biological, immune and neurological dysfunction in ME… Given that the CBM is cited as the basis for CBT and GET interventions, there is an urgent need for clinicians, therapists and health providers to review this treatment paradigm.

Carol Monaghan MP thinks that the PACE trial was, in part, a DWP money saving exercise. As she said:

One wonders why the DWP would fund such a trial, unless of course it was seen as a way of removing people on long-term benefits and reducing the welfare bill.

But whatever the reasons behind the PACE trial, one thing is already clear. It was and is flawed. Its treatments can be highly damaging to patients. And as Myhill says, it could be considered a form of abuse. Now is the time for people living with ME and their supporters to redress the balance. And that starts with MAIMES.

Featured image via UK government – Wikimedia and Elias Sch – pixabay

Get involved

source: https://www.thecanary.co/uk/analysis/2019/05/11/a-dwp-backed-medical-scandal-could-be-blown-wide-open/

DWP ARCHIVE =

DWP OUTRAGE = “Starving man deemed ‘fit to work’ at just 6st dies” + archive

 

 

 

 

 

 

 

source:  https://metro.co.uk/2019/04/22/starving-man-deemed-fit-work-just-6st-dies-9283149/
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UPDATE 08 May 2019 – INSANE: DWP decisions continue to defy belief

https://www.thecanary.co/uk/analysis/2019/05/07/dwp-decisions-continue-to-defy-belief/ #DWP #justice #UC #UniversalCredit #PIP #ESA #Corruption

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See the archive:
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Friday, 11 January 2019

SHOCKING: “Hungry children ‘eating from school bins’ in Morecambe, Lancs” + SCANDALOUS DWP FAILINGS ARCHIVE

HOW £MUCH DOES THE GOVT. GIVE TO THE #ARMS TRADE HERE + ABROAD CONSTANTLY?  DESPICABLE!  and note  judges have just had a huge pay rise: Rise would see their pay jump from £181,500 a year to £240,000. Judges could reportedly be in line for an annual pay rise of almost £60,000 in a move which could spark fury among public sector workers. 12 Oct 2018 – Judges ‘in line for £60,000 pay rise’ The Independent  

https://www.independent.co.uk/…/judges-pay-rise-salary-senior-salaries-review-body-th…

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Hungry children ‘eating from school bins’ in Morecambe, Lancs BBC News

Siobhan Collingwood

Siobhan Collingwood said children are arriving at school with empty lunchboxes

Children are arriving at a school so hungry they are searching the bins for food, its head teacher has said.

A cross-party group of MPs has called on the government to appoint a Minister for Hunger to deal with “food insecurity” especially among children.

Siobhan Collingwood, head teacher of the school in Morecambe, Lancashire, said one in 10 of its pupils came from families using foodbanks.

“Unfortunately I’ve got the faces behind the statistics,” she added.
The Environmental Audit Committee highlighted 2017 Unicef figures showing 19% of children under 15 in the UK live with adults who struggle to buy food.
The government said the number of children living in workless households is at a record low.

MPs have called on the government to appoint a Minister for Hunger

School meals generic

Ms Collingwood said there were currently 35 children at her school whose families are supported by foodbanks, adding: “It’s probably higher because they are the ones we know about.”

“When children are food deprived it alters their behaviour and they do become quite food obsessed, so we have some children who will be stealing fruit cores from the bins,” she added.
“We have children who have nothing in their lunch boxes and children who are just fixated upon food.”

The head teacher said it was “heartbreaking” and added that parents had been “arriving at school literally bursting into tears telling me they have no means of feeding their children”.
Ms Collingwood said she had noticed more problems since the introduction of Universal Credit.

“Families are coming in telling me they are routinely loaning food to each other, my day-to-day experience is telling me this is a growing problem.”

A Department of Work and Pensions spokeswoman said that, since 2010, one million people had been lifted out of absolute poverty – including 300,000 children.

She added: “We already provide support through free school meals and our Healthy Start Vouchers.”

Related Topics

source: https://www.bbc.co.uk/news/uk-england-lancashire-46827360 
#childabuse #Raging #Anonymous #UK

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 DWP ARCHIVE 

MUST SEE! – “The Universal Credit Crisis” – BBC Panorama 12 Nov. 2018 + archive

Universal Crap   “THE UNIVERSAL CREDIT CRISIS” – BBC iPlayer [while it lasts: 28 days?]  Panorama 12/11/2018 –   https://www.bbc.co.uk/…/panorama-the-universal-credit-crisis  related: See the DWP archive  of failures: https://butlincat.com/?s=dwp
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MUST SEE LINKS! “Revealed: DWP’s secret, ‘financially devastating’ proposals for benefits appeals” + “Terminally ill Northampton woman has appeal over disability benefits refused” + “Former DWP ministers could face police investigation over fit-to-work tests + MORE

Revealed: DWP’s secret, ‘financially devastating’ proposals for benefits appeals 0 By John Pring on April 21, 2016 Benefits and Poverty Listen The Department for Work and Pensions (DWP) has drawn up secret plans for sweeping reforms that would make it … Continue reading 
Posted in Uncategorized Tagged  1 Comment |

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OUTRAGEOUS!! Diabetic man blames DWP benefit sanctions for leg amputation + DAVID CLAPSON: “HOLD AN INQUIRY INTO BENEFIT SANCTIONS THAT KILLED MY BROTHER!”

Originally posted on VICTIMS OF THE STATE:
above: Jeremy Corbyn  Diabetic man blames DWP benefit sanctions for leg amputation 17:55, 7 Sep 2016 Updated 17:56, 7 Sep 2016 By Todd Fitzgerald David Boyce, from Weaste, was hit with benefit sanctions but has…
Posted in Uncategorized | Leave a comment | 
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OUTRAGEOUS!! Diabetic man blames DWP benefit sanctions for leg amputation + DAVID CLAPSON: “HOLD AN INQUIRY INTO BENEFIT SANCTIONS THAT KILLED MY BROTHER!”

above: Jeremy Corbyn  Diabetic man blames DWP benefit sanctions for leg amputation 17:55, 7 Sep 2016 Updated 17:56, 7 Sep 2016 By Todd Fitzgerald David Boyce, from Weaste, was hit with benefit sanctions but has now won an appeal and wants compensation … Continue reading 
Posted in Uncategorized | Tagged  | 1 Comment |
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“Former DWP ministers could face police investigation over fit-to-work tests” + BOURNEMOUTH SURGERY FAILING PATIENTS + WAGING WAR ON THE SICK AND DISABLED + more

Former DWP ministers could face police investigation over fit-to-work tests . A complaint was made against Iain Duncan Smith and Chris Grayling    Monday 9 May 2016  Jon Stone @joncstone Former Work and Pensions Secretary Iain Duncan Smith Getty          Police in Scotland … Continue reading 
Posted in Uncategorized | Tagged  | Leave a comment |
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Appalling DWP Failings: “Universal Credit dad-of-three tried to kill himself while on phone to DWP” 01 Jan. 2018 + archive
Universal Credit dad-of-three tried to kill himself while on phone to DWP Dean Lovell-Payne, 52, took a massive overdose in September 2018 after having to endure almost three months without receiving any benefits at all Dean Lovell-Payne said although he … Continue reading 
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MORE DWP MONSTROSITIES: “Mum with cancer on Universal Credit forced to wait months to bury son after she was £900 short for funeral” + archive

Mum with cancer on Universal Credit forced to wait months to bury son after she was £900 short for funeral  Desperate cancer patient Diane Hannaby, 52, was left in debt after waiting two months for enough funds for her son’s funeral Cancer … Continue reading 
Posted in Uncategorized | Tagged  | Leave a comment | 
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“Stop Universal Credit” day is 01 December: “The DWP is facing the wrath of thousands of people this week”
Posted on by 
The DWP is facing the wrath of thousands of people this week Steve Topple 26th November 2018 0  0 comments https://spkt.io/a/149301 SPONSORED BY CASUMO The Department for Work and Pensions (DWP) is facing the wrath of potentially thousands of people this week. … Continue reading 
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UNIVERSAL CREDIT FAILS: May’s DWP claims at PMQs were debunked before she began 25 Oct. ’18 + archive
Posted on by 
May’s DWP claims at PMQs were debunked before she began AUDIO: LISTEN to this article:   https://spkt.io/a/128181 At Prime Minister’s Questions (PMQs) on Wednesday 24 October, Theresa May made some bold claims about the Department for Work and Pensions (DWP). Sadly … Continue reading 
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SCRAP “UNIVERSAL CREDIT”!: The DWP is now facing the wrath of five million workers 18 Sept. 18 + archive

STEVE TOPPLE The Department for Work and Pensions (DWP) is under more pressure over its flagship benefit policy. Because an organisation with over five million members has now officially called for Universal Credit to be stopped and scrapped. The DWP: five million … Continue reading 
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DWP: The “DOSSIER OF DISGRACE” and demonising clients 29 July 2018 + archive

update:  More than a million benefits sanctions imposed on disabled people since 2010 Groundbreaking Demos study reveals ‘culture of disbelief’ about disability among jobcentre staff leads to money being docked https://www.theguardian.com/society/2018/feb/18/disabled-people-million-benefit-sanctions-since-2010.
 
The DWP was just savaged in a ‘dossier … Continue reading 
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SCANDALOUS! “The DWP just revealed the eye-watering millions it paid out to private companies” [don’t forget the highly questionable “Prospects Workfair”] – JULY 26TH, 2018 + archive

The DWP just revealed the eye-watering millions it paid out to private companies JULY 26TH, 2018  STEVE TOPPLE TRENDING, UK https://spkt.io/a/98811On Thursday 26 July, the Department for Work and Pensions (DWP) revealed the amount it paid out in June to private contractors. It’s … Continue reading 
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The DWP sneaked out a damning admission just before parliament closed for the summer – The Canary 26 July 2018 + archive

JULY 25TH, 2018  STEVE TOPPLE ANALYSIS, UK The Department for Work and Pensions (DWP) released some damning information about benefit sanctions; conveniently just as parliament was closing for its summer holidays. The DWP: sanctions and mental health On Tuesday 24 July, minister of … Continue reading 
Posted in Uncategorized | Tagged  | 1 Comment | 
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DWP WRONG AGAIN: “The #DWP just admitted a court case it lost will affect thousands of people” AUDIO + ATOS + SANCTIONS DEATHS + archive

The DWP just admitted a court case it lost will affect thousands of people JULY 11TH, 2018  STEVE TOPPLE ANALYSIS, UK https://spkt.io/a/95341 The Department for Work and Pensions (DWP) just admitted that a court case it lost means it may have to pay … Continue reading 
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SHOCKING: “Hundreds losing disability benefits in Personal Independence Payments shake-up” + The DWP has been caught trying to ‘coerce’ GPs into saying their patients are fit-for-work – 29 May 2018

 “Hundreds losing disability benefits in Personal Independence Payments shake-up” – Echo Hundreds losing disability benefits in Personal Independence Payments shake-up  Will Frampton  WFrampton_Echo   HUNDREDS of disabled people in Dorset lost their benefits when they were reassessed for a new government … Continue reading 
Posted in Uncategorized | Tagged  | 1 Comment |
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DISGRACEFUL: “The DWP left one man so ‘destitute’ that the police had to step in to help him” – The Canary

The DWP left one man so ‘destitute’ that the police had to step in to help him MAY 18TH, 2018  STEVE TOPPLE TRENDING, UK TRENDING The Department for Work and Pensions (DWP) reportedly left one man so “destitute” that police were called out … Continue reading 
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Dying mum told by DWP to prove for third time that her cancer is terminal – MetroUK

Bradley JollyWednesday 4 Apr 2018 3:41 pm MORE: Most people are now winning their appeals against disability benefit decisions MORE: Every PIP claim reassessed: Here’s what you need to know   source: http://metro.co.uk/2018/04/04/dying-mum-told-by-dwp-to-prove-for-third-time-that-her-cancer-is-terminal-7440437/?ito=amp-share-facebook-top?ito=cbshare see more: ‘Suicidal’ man with anorexia told … Continue reading 
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The DWP is in court again and it could ‘open the floodgates’ for countless disabled people – the Canary

The DWP is in court again and it could ‘open the floodgates’ for countless disabled people APRIL 30TH, 2018  STEVE TOPPLE ANALYSIS, UK Spread the word:  Facebook Twitter ANALYSIS https://tpc.googlesyndication.com/safeframe/1-0-23/html/container.htmlTHE VIEWS EXPRESSED IN THIS PIECE ARE NOT INTENDED AS LEGAL ADVICE. The Department … Continue reading 
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OUTRAGEOUS: The DWP has been caught trying to ‘coerce’ GPs into saying their patients are fit-for-work – the Canary – PEOPLE ARE DIEING

The DWP has been caught trying to ‘coerce’ GPs into saying their patients are fit-for-work APRIL 27TH, 2018  STEVE TOPPLE ANALYSIS, DISCOVERY, HEALTH Campaigners and medical professionals have discovered the Department for Work and Pensions (DWP) is trying to “coerce” GPs into saying that their sick … Continue reading 
Posted in Uncategorized | Tagged  | 2 Comments | 
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DWP goes back to court to block future benefit appeals – 20 Feb. 2018

The DWP is using a bedroom tax case to challenge future welfare appeals By Natalie BloomerTuesday, 20 February 2018 10:15 AM 7 The government is back in court today in a second attempt to block a legal route used by many people … Continue reading 
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DWP’s contracted outfit ATOS hardly cut it – “Private Eye” no. 1460 + BENEFIT SANCTIONS + more

“Private Eye” – no. 1460 –  23/12/17 – 10/01/18 Monday, 19 September 2016 OUTRAGEOUS!! Diabetic man blames DWP benefit sanctions for leg amputation + “HOLD AN INQUIRY INTO BENEFIT SANCTIONS THAT KILLED MY BROTHER!” + MORE Diabetic man blames DWP … Continue reading 
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Desperate disabled gran attempted suicide after brutal DWP cuts left her fearing she would lose her home 18 Nov 17 D. Mirror + MUST SEE LINKS

Originally posted on VICTIMS OF THE STATE:
Revealed: DWP’s secret, ‘financially devastating’ proposals for benefits appeals 0 By John Pring on April 21, 2016 Benefits and Poverty Listen The Department for Work and Pensions (DWP) has drawn up secret plans…
Posted in Uncategorized | Tagged  | Leave a comment | 
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OUTRAGEOUS!! Diabetic man blames DWP benefit sanctions for leg amputation + DAVID CLAPSON: “HOLD AN INQUIRY INTO BENEFIT SANCTIONS THAT KILLED MY BROTHER!”

OUTRAGEOUS!! Diabetic man blames DWP benefit sanctions for leg amputation + DAVID CLAPSON: “HOLD AN INQUIRY INTO BENEFIT SANCTIONS THAT KILLED MY BROTHER!” Posted on September 19, 2016 by butlincat above: Jeremy Corbyn  Diabetic man blames DWP benefit sanctions for leg amputation17:55, … Continue reading 
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UK: DWP AGAIN IN DISREPUTE OVER DUBIOUS AND SHOCKING LONGRUNNING CASE – 29 Sept. 17

You know it’s bad news for the DWP when a judge begins his ruling with ‘Oh dear. Oh dear. Oh dear.’ September 28th, 2017 Emily Apple UK   It is very unusual for a judge to start the introduction [pdf, … Continue reading 
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OUTRAGEOUS! “Terminally ill woman found ‘fit for work’ by callous DWP needs your help”

Despite being diagnosed with terminal cancer, Claire was found ‘fit for work’ by the Department for Work and Pensions. Sue Jones On Mar 1, 2017 Last updated Mar 1, 2017      Claire Hardwicke. Photo: Tiffany Williams/JustGiving 4.6K Shares Share Tweet … Continue reading 
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Attack on DWP sanctions by the National Audit Office – PETITION UPDATE 2 DEC. 2016

Petition update Attack on sanctions by the National Audit Office   Gill Thompson Stevenage, United Kingdom 2 Dec 2016 — The government sadly still feel that sanctions are a necessary and long-standing part of the welfare system, and indeed still quote … Continue reading 
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“Former DWP ministers could face police investigation over fit-to-work tests” + BOURNEMOUTH SURGERY FAILING PATIENTS + WAGING WAR ON THE SICK AND DISABLED + more

Former DWP ministers could face police investigation over fit-to-work tests . A complaint was made against Iain Duncan Smith and Chris Grayling    Monday 9 May 2016  Jon Stone @joncstone Former Work and Pensions Secretary Iain Duncan Smith Getty          Police in Scotland … Continue reading 
Posted in Uncategorized Tagged  Leave a comment 
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MUST SEE LINKS! “Revealed: DWP’s secret, ‘financially devastating’ proposals for benefits appeals” + “Terminally ill Northampton woman has appeal over disability benefits refused” + “Former DWP ministers could face police investigation over fit-to-work tests + MORE

Revealed: DWP’s secret, ‘financially devastating’ proposals for benefits appeals 0 By John Pring on April 21, 2016 Benefits and Poverty Listen The Department for Work and Pensions (DWP) has drawn up secret plans for sweeping reforms that would make it … Continue reading 
Posted in Uncategorized Tagged  1 Comment | 
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OUTRAGEOUS: Universal Credit mum in High Court fight after benefit leaves her £8.98 for a month 12 Dec. ’18 + archive

via Universal Credit mum in High Court fight after benefit leaves her £8.98 for a month see the archive:  MORE DWP MONSTROSITIES: “Mum with cancer on Universal Credit forced to wait months to bury son after she was £900 short … Continue reading 
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MUST SEE! – “The Universal Credit Crisis” – BBC Panorama 12 Nov. 2018 + archive

Universal Crap   “THE UNIVERSAL CREDIT CRISIS” – BBC iPlayer [while it lasts: 28 days?]  Panorama 12/11/2018 –   https://www.bbc.co.uk/…/panorama-the-universal-credit-crisis  related: See the DWP archive  of failures: https://butlincat.com/?s=dwp
Posted in Uncategorized | Tagged  | Leave a comment |
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Universal Credit isn’t working!!! Sign the petition to Esther McVey “PAUSE THE ROLL OUT OF UNIVERSAL CREDIT”! + archive

Pause the roll out of Universal Credit To Esther McVey Petition text Pause the roll out of Universal Credit: fix it or scrap it Why is this important? Universal Credit is a scheme that replaces lots of different benefits. But … Continue reading 
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